I made a scary decision this week. OK, that’s being a little trivial. I’ve made far scarier decisions in the past 22 months, you know, like treatment plans and surgery decisions and writing out my will and my wishes for what I’d want if the worst happened. So yeah, nothing on that scale, by far.… Continue reading Cabo Hair, Part II
Sorry I’ve been MIA. No news is good news? Dr. V said at my last appointment there’s nothing much for him to do for me right now, in the best way possible. My labs are great, my side effects are what they are, my CTs are still mercifully clear, so I’m kind of boring right… Continue reading The Month of Kidney
“If they say Who cares if one more light goes out? In a sky of a million stars It flickers, flickers Who cares when someone’s time runs out? If a moment is all we are We’re quicker, quicker Who cares if one more light goes out? Well I do” – Linkin Park, “One More Light”… Continue reading Survivor’s Guilt
I have dreamed of writing this post for so long that I don’t even quite know what to say. You would think I would have put more thought into this, but I didn’t want to get too far ahead of myself. I was worried if I mentally wrote it, I’d jinx myself. Hope is a… Continue reading Survivor.
“She is clothed with strength and dignity, and she laughs without fear of the future.” – Proverbs 31:25 (NLT) Welp. Tomorrow is Annual Birthed a Kidney Day. June 8 feels rather traumatic to me. First of all, I’ll admit it. I thought I was a big ole wimp. The idea then of going through this… Continue reading Free Bird
un. one in my ancestors’ tongue. un-raveling. un-nerving. un ans. one year. i did it. i made it.
My one year mark is approaching very quickly. Next week, as a matter of fact. I’ve been all over the place emotionally. I’m grateful, of course. Over 25 percent of metastatic kidney cancer patients don’t even make it this far. So you know, my perception of gratitude is skewed these days. But there’s been a lot… Continue reading Cancer is Hell
Anyone else around here a Three Dog Night fan? No? Just me? If you are, then my latest scan results would explain why I’ve been humming one of their hit songs lately. Are you ready for this? No, really. Are you sitting down? I’ll give you a minute. My March scan showed I have only… Continue reading One Is The Loneliest Number
Well, my week break came and went quickly. I’m back on Cabo at 40 mg. Happy to be back on the medication, as I’m hoping for continued good results. However, I’m drained. I counted yesterday, and I’m now on three different medications to manage the side effects of the Cabo. In addition to the blood… Continue reading Back In The Saddle
As I predicted, Dr. V decided it was time for me to take a break on Cabozantinib. I’ve been on 60 mg consistently since beginning the clinical trial in September, so he said he was “surprised it’s taken this long” for me to get to the point of needing a break. The medication’s toxicity builds… Continue reading Cabo on Vacation